Grieving the losses, yet grateful
Let's dive straight in: Thoughts from Judy: If you remember, I was diagnosed by a neurologist with motor neurone disease on the 30th of July last year. It is bulbar onset, which means the degeneration of the nerves started with those connecting my brain stem to the tongue and throat muscles, so I struggle with eating and talking, and the weakness has started spreading to my limbs. Recently, I've had times of grieving, grieving the losses. Loss of normal conversation, since my speech is slower and softer, with less variation in pitch. Loss of robust fellowship over meals, since I eat slowly and take long over mouthfuls. L oss of being able to connect with kids, from young to teens. The loss of my profession. It's really hard. T he weakness in my hands and arms has thankfully stabilised and doesn't seem to be getting worse. Things are changing, like Ian has to make phone calls for me and conversations are slower and not over a meal. I still go into shops and ask fo...